First Blog Post
January 2010
I’ve created this blog as a clearinghouse for people to discuss their health issues. I’d like us to share opinions on doctors, treatment options and, above all, to encourage each other. I am living proof that sharing health experiences leads to positive results. To say this hasn’t been “my year” is an understatement. On Jan.7, I started having extreme episodes of vertigo. If you have never experienced vertigo, imagine the sensation you experience when you spin around quickly for several minutes. Now imagine having that sensation for 29 hours … straight … without interruption. The pain and nausea, at times, has been so severe that I’ve been bedridden for hours — even days — at a time. The episodes happened every three or four days. It was hell.
After my first episode of vertigo, I, of course, sought medical attention; it took months to get an appointment at the Arkansas Headache Clinic (who knew so many people suffer from migraines? I shudder to think about new health care legislation). The treatment I received was for migraines. After months of trying different medicines with no clear or lasting relief, I basically received a “see you in November” appointment. I felt like hell, and I was scared. Neurologist Reginald Rutherford was my next doctor. For a time, Dr. Rutherford’s migraine treatment gave me relief. I’m not exactly sure if the treatment worked because I wanted so desperately to feel well or if my disease had let up a little. I received phone calls, e-mails, notes and letters from concerned friends and readers responding to my publisher’s letters discussing my illness. These conversations helped me figure out which doctor to see and, as a result, I received a diagnosis. Dr. John Dornhoffer identified this mystery ailment in 10 minutes.
I have Meniere’s Disease. It is a curious disease. Meniere’s Disease is a disturbing illness, presenting patients with hearing loss, pressure in the ear, tinnitus (a ringing sensation in the ear), severe imbalance and vertigo. The severity of Meniere’s varies from person to person; unfortunately mine has been extreme.
Do you or someone you know have information about Meniere’s Disease? Do you suffer from vertigo or vestibular migraines (migraine-induced vertigo)?If you have suggestions, ideas or any information, I’d appreciate hearing from you. Please join the conversation.